Medical Updates

April 22nd, 2009

Some progress has been made in miss Reveille’s life. A few weeks ago she went in for a Cystometrogram. This test is standard for all Spina Bifida patients and the results we received were positive overall.

Her clubbed foot is improving well and hopefully she only has 3 more casts including the one she has on now. She will be going in for a minor surgery on May 6th to allow her heel to drop correctly. After which she should only need one more cast & some bracing after the final cast. It is great to have the end of this step in Reveille’s development in sight. Please pray that the surgery is successful and her recovery is swift.

No More Bandage!

April 1st, 2009

Yesterday was a happy doctor’s visit. According to Reveille’s neurosurgeon, her back is all but healed. That means no more wraps or bandages to keep clean and in place! Reveille did get her 4th cast too. Getting a new cast is never a happy experience for her, but it’s one more out of the way. I am looking forward to the day my daughter doesn’t need any more casts or bandages and she can wiggle free and easy.

Weekly doctor visits 3-24-09

March 25th, 2009

This weeks spina bifida clinic included a visit to orthopaedics and the pediatric neurosurgen. Reveille had her week two cast replaced with a new week three cast. This new cast is working on extending her foot to about a 70 degree angle. Once that angle is achieved she will be ready for an outpaitent surgery to lengthen her acheilles tendon. Which I’m not looking forward to having her to through another surgery but it’s just one step closer to her foot being fixed.
Reveille was as good as could be expected for what is being done with her foot. They removed the previous cast with the saw which is quite loud. Then they pry apart the cuts and remove the plaster pieces. Next to remove is the cotton wrapping. Reveille’s foot is at this point looking very straight and her tors are now pointed down like a ballerina. The skin on the outer side is looking wierd due to the movement happening there are also some sore looking areas. We were told to just leave them and that that is normal. But still my baby having any sore there bothers me and I want it fixed. My mom has been coming with for these visits and she has been a great help during these times. After the previous cast has been removed my mom washed her leg and then we massaged that leg and helped Revie excercise it. Revie’s calf muscle is starting to get smaller which makes me feel bad for her. Before appling the cast they stretch her foot which really hurts Revie, she crys so hard that she turns red. I wish i could help her more than just trying to console and soothe her. This week they applied the cast in two portions a lower to get the foot in position then finishing it off with the rest of the leg. I asked that they move it down a bit but not as much as I would have liked. They also weighted her without the cast which I was very happy about she was 9 lbs 1 oz.
After the casting we had to see the neurosurgen who is very nice and caring. She likes to get us in the office asap so we don’t have to wait with everyone else and be exposed to all the germs. She was very happy with Revie’s incision site healing. Though something a bit funny is going on. It seems that some young babies bodies do not breck down internal stitches. So they heal but as they are healing their body pushes the stitches to the surface to get them out. There seems to be one area now that this is happening to her but there maybe another toward the lower area of the incision. All of this is fine but we have to watch for infection. I beleive that all the doctors and nurses like to see the little babies grow week by week.